Friday, January 25, 2013
post surgey
well today Rayden looks a lot more swollen it is sad to see his little sad face he makes when he is in pain, he hates it when anyone touches him and expecally he hares it when they do his cares this is when they change all his bandages on his open wounds from his skin breaking cause it is stretching so much because of all the fluid. it breaks my heart i am not able to take his pain away. i love to spend all the time i can with him but the nurse told me she thinks it would be a good idea for me to go back home to saint George for a few days to take care of things at home, so we might be going back for a few days i cant stand the thought of leaving him but like the nurse said i better do it now so that when he needs me to feed him and hold him i will be there and to top off the last couple days we blew a tire. money we dont have. blah today jsd been stressful i counted his medication machines he has 13 machines giving him different meds its sad. i just hope he starts to improve and get smaller loose that swelling i cant handle seeimg him so swollen that his skin is breaking it kills me. but on a good note he is peeing more and he finally pooped.
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I am still praying for Rayden, he is such a little fighter! Thank you for the update...xoxo
ReplyDeleteRayden your a dtrong baby, we are praying that you get better soon;))
ReplyDeleteYou don't know me, but I was at Primary Children's last year with my little girl. Here are some tips for you to survive! If people ask what they can do tell them they can buy you lunch, the cafeteria there is awesome! You can set up an account people can add money to it. Get primary nurses. As soon as he is stable keep telling them you'd like to be transferred to the St. George Nicu ( if you want to) you have to keep on them about this one! If you don't like a nurse tell the charge nurse you'd prefer someone else. Hard days are inevitable, so cry! The Wednesday parent hour gets you away for a minute and free lunch! You can meet some other parents for more support. This is a hard place to be, but you can and will survive, even if you don't relieve it right now. You are in my prayers! Anything you need I would love to help.
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